About the study

Dementia Australia is working on improving its websites. They have a number of different websites for different purposes and this research is designed to find out how they could work better in future.

This survey is for people living with dementia, their families and friends, healthcare workers and members of the community. We want to hear from people from all backgrounds.

This survey is being delivered by Dementia Australia’s research partner for this study, Patternmakers Pty Ltd (Australia, ABN 97 627 469 649). Patternmakers is a research agency based in Sydney, Australia. It specialises in research related to culture, creativity and community. You can read more about its work here.

Participating is completely optional. Your survey responses will be anonymous and confidential.

Below, you can read the privacy collection statement for the study.

Privacy collection statement

Introduction

Patternmakers respects and upholds your rights under the Australian Privacy Principles contained in the Privacy Act 1988 (Cth) ("Privacy Act"). As an Australian research organisation, Patternmakers also adheres to the Privacy (Market and Social Research) Code 2014 (“Code”). For more information about the Privacy Act, the Australian Privacy Principles and the Code click here.

On the first page of the survey, you will be presented with a privacy statement. By clicking ‘Next’ to Start the survey, you are indicating that you acknowledge the statement and consent to this Privacy Collection Statement.

The survey will ask about your views on Dementia Australia’s websites. To help interpret responses, the survey will also as you some questions about your demographic and health information, however it will not as for any personally-identifiable information like your name or email address.

Your survey responses will be anonymous.

This anonymous data will be collected and stored offshore via Alchemer (formerly SurveyGizmo) at www.alchemer.com, a well-known survey software platform based in the USA. Alchemer LLC is committed to complying with international regulations including GDPR. You can read more about Alchemers’ Privacy Policy here www.alchemer.com/privacy.

At no point, will Alchemer ask for your name, phone number or email address or any personally identifiable information. Please take care in your written answers that you don’t provide personalised information.

The survey is set up to stop the storage of any type of identifying information like Geodata, IP address, and email invite data.

If the survey is anonymous, how will I enter the prize draw?

At the end of the survey, you will be given the option to go in the draw to win a prize. Running a prize helps us motivate participation and hear from a range of people.

If you choose to enter the draw, and click next, you will be taken to a separate, secure platform called Checkbox Survey at www.checkbox.com, where you will have the option to enter the draw by providing your email address.

Checkbox Survey data is stored securely on servers hosted in Australia. You can read more about Checkbox Privacy Policy here: www.checkbox.com/privacy_policy/ and their data hosting in AWS centres here.

Your email address will be stored separately from your survey response, so your survey responses will remain anonymous.

What are the purposes for which Patternmakers use, handle and disclose your personal information?

We will only use and disclose your personal information for the purpose of conducting our research and in accordance with our company’s overall Privacy Policy.

Questions

If you have any questions about this Privacy Collection Statement or our Privacy Policy then we ask that you contact us immediately using the following contact details:

Jodie Bombardier, Operations Manager: info@thepatternmakers.com.au